where to start. i’m just going to give up the attepmt at telling a clear story and let things come out as they do.
last night mom and i stayed here alone. her brother, his wife, and cousin loney all left for kentucky. she told me as i went to bed that she was glad i was here because she wasn’t sure how she would stay here alone. on future visits, she plans to stay with patty ann. i thought i heard mom moving around, so i got up to check. i’m in the guest room and mom has been staying in grandma and grandpa’s bed. the door to that room is open so i figured we’d be starting the day here soon. nope, she’s out in the tv room on the fold out bed with the tv on. looks like she did some more sorting after i fell asleep. and there’s a magnolia blossom on the dresser, she must have cut that last night.
yesterday grandma was pretty alert. they only gave her half her normal dose of xanax, so her nerves were calmed but she wasn’t so out of it all day. when we went by in the early afternoon with loney, the nurse aid called mom out into the hall to speak with her. apparently, that morning grandma had asked her, ‘will you do something for me?’
the aid asked, ‘what do you want?’
and grandma said, ‘i want you to help me die.’
she hasn’t said anything to any of us yet. not that there is anything we really could do — we’re not going to take her feeding tube out and starve her to death.
going through jewelry and things last night my mom nearly had a breakdown. she knew what we were doing was right and she thought we should be doing it, but that it felt really bad because grandma is still alive. no one thinks she’s going to come home, especially not to this house, but she is still alive.
if she does another miraculous turn around, mom’s mentioned trying to move her down to florida to live with she and dad. i guess mom would have to take early retirement for that, but it seems so far out of the realm of possibility that no one’s thinking seriously of what we would do.
mom really wants to get as much done as we can while we’re here so it doens’t all fall to pat. husbands, with the exception of my dad, don’t seem to be as understanding as we would all hope and there’s extra stress there, too.
mom made a hair appointment for me with my aunts’ hair place. cut and colour. she likes to make things look nice when there’s stress. it’s not a bad approach and certainly works to some degree. i know she doesn’t think it will make everything all better, but treating yourself does create some cusion. i wonder what it is about that which works. is it focusing on something else for a bit? my mind isn’t working that way right now. i’m having trouble with more ‘complex’ concepts.
as we left the nursing home yesterday, loney said to me that she thought i was really good with grandma, that grandma seemed to really respond to me. i’m glad of that, i’m glad i can help calm her and sometimes get her to focus a little. i wish i lived closer so i could be here more often. if i lived in the area i’d come by every day after work and maybe in the mornings, too, so i could catch her at her best. i just want to help her know it’s ok for her to go if she wants to and that where she is she’s fine. she’s ok.
she’s afraid of being alone, she told me. she knows everyone loves her, she pshawed and said, ‘i know *that*.’ last time i reminded her. but i think she really wants people physically with her.
i think she doesn’t like that she isn’t home, that grandpa isn’t there (we still haven’t told her why), that she can’t just do what she wants to when she wants to. that she can’t die but she can’t really live.